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U.S. Department of Health & Human Services
Health Resources and Services Administration
HRSA NEWS ROOM
http://newsroom.hrsa.gov
FOR IMMEDIATE RELEASE
Thursday, May 14, 2015
CONTACT: HRSA PRESS OFFICE
301-443-3376

HRSA awards $5 million to support families of children with special health care needs

Medicare Access and CHIP Reauthorization Act funds support Family-to-Family Health Information Centers in all 50 states and District of Columbia

The Health Resources and Services Administration (HRSA) announced $5 million in new and continuing competitive grant awards to support Family-to-Family Health Information Centers, primarily non-profit organizations run by and for families with children and youth with special health care needs. Funding for the centers was extended through fiscal year 2017 by the Medicare Access and CHIP Reauthorization Act of 2015.

“Family-to-Family Health Information Centers served nearly one million families of children with special health care needs last year alone,” said HRSA Acting Administrator Jim Macrae. “Ninety-six percent of the families the centers served reported they were key in helping families find and navigate additional community resources and care for their children.”

The state-wide centers are staffed by trained family leaders who themselves have children with special health care needs, such as cerebral palsy, cystic fibrosis, autism, developmental delay, and other health chronic conditions, and are linked to health professionals providing care. Centers provide education, training, peer support, and expertise in navigating federal, state and local public and private health care systems for families of children and youth with special health care needs.

“In addition to providing needed support for families, last year approximately 400,000 physicians, nurses, and other health professionals tapped centers’ resources, making information regarding the needs of these children more widely available than ever before,” said HRSA Associate Administrator for the Maternal and Child Health Bureau, Michael Lu, MD, MPH.

Since the program’s inception in 2005, Family-to-Family Health Information Centers have served millions of families and health professionals nationwide. This latest round of funding supports 51 centers in all 50 states and the District of Columbia, with approximately $95,700 awarded to each center.

Family-to-Family Health Information Centers Fiscal Year 2015 Competitive Awards

Grantee Organization

City

State

Award Amount

STONE SOUP GROUP

Anchorage

AK

$95,700

FAMILY VOICES OF ALABAMA INC

Mobile

AL

$95,700

ARKANSAS DISABILITY COALITION

Little Rock

AR

$95,700

RAISING SPECIAL KIDS

Phoenix

AZ

$95,700

SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIES

San Francisco

CA

$95,700

HIGHPOINTE CENTER

Centennial

CO

$95,700

PARENTS AVAILABLE TO HELP INC

North Haven

CT

$95,700

ADVOCATES FOR JUSTICE AND EDUCATION INC.

Washington

DC

$95,700

DELAWARE FAMILY VOICES, INC.

Wilmington

DE

$95,700

FAMILY NETWORK ON DISABILITIES OF FLORIDA, INC.

Dunedin

FL

$95,700

PARENT TO PARENT OF GEORGIA INC

Atlanta

GA

$95,700

HAWAII PEDIATRIC ASSOCIATION RESEARCH & EDUCATION FOUNDATION

Honolulu

HI

 

$95,700

ACCESS FOR SPECIAL KIDS RESOURCE CENTER, INC.

Johnston

IA

$95,700

IDAHO PARENTS UNLIMITED INC

Boise

ID

$95,700

ARC OF ILLINOIS, THE

Frankfort

IL

$95,700

FAMILY TO FAMILY INC

Indianapolis

IN

$95,700

FAMILIES TOGETHER INC

Wichita

KS

$95,700

HEALTH & FAMILY SERVICES, KENTUCKY CABINET FOR

Louisville

KY

$95,700

BAYOU LAND FAMILIES HELPING FAMILIES INC

Thibodaux

LA

$95,700

FEDERATION FOR CHILDREN WITH SPECIAL NEEDS, INC., THE

Boston

MA

$95,700

PARENTS' PLACE OF MARYLAND, INC, THE

Glen Burnie

MD

$95,700

MAINE PARENT FEDERATION INC

Farmingdale

ME

$95,700

MICHIGAN PUBLIC HEALTH INSTITUTE

Okemos

MI

$95,700

PACER CENTER INC

Minneapolis

MN

$95,700

UNIVERSITY OF MISSOURI SYSTEM

Kansas City

MO

$95,700

UNIVERSITY OF SOUTHERN MISSISSIPPI

Hattiesburg

MS

$95,700

PARENTS LETS UNITE FOR KIDS

Billings

MT

$95,700

EXCEPTIONAL CHILDREN'S ASSISTANCE CENTER INC

Davidson

NC

$95,700

FAMILY VOICES OF NORTH DAKOTA, INC.

Edgeley

ND

$95,700

PTI NEBRASKA

Omaha

NE

$95,700

NEW HAMPSHIRE COALITION FOR CITIZENS WITH DISABILITIES

Concord

NH

$95,700

STATEWIDE PARENT ADVOCACY NETWORK, INC

Newark

NJ

$95,700

PARENTS REACHING OUT TO HELP INCORPORATED

Albuquerque

NM

$95,700

FAMILY TIES OF NEVADA INC

Reno

NV

$95,700

PARENT TO PARENT OF N Y S

Tupper Lake

NY

$91,450

CHILDREN'S HOSPITAL MEDICAL CENTER

Cincinnati

OH

$95,700

OKLAHOMA FAMILY NETWORK, INC.

Oklahoma City

OK

$95,700

OREGON HEALTH & SCIENCE UNIVERSITY

Portland

OR

$95,700

PARENT EDUCATION AND ADVOCACY LEADERSHIP CENTER

Pittsburgh

PA

$95,700

RHODE ISLAND PARENT INFORMATION NETWORK, INC.

Cranston

RI

$95,700

FAMILY CONNECTION OF SOUTH CAROLINA, INC.

Columbia

SC

$95,700

SOUTH DAKOTA PARENT CONNECTION INC

SIOUX FALLS

SD

$95,700

TENNESSEE DISABILITY COALITION

Nashville

TN

$95,700

TEXAS PARENT TO PARENT

Austin

TX

$95,700

UTAH PARENT CENTER, INC.

Salt Lake City

UT

$95,700

VIRGINIA COMMONWEALTH UNIVERSITY

Richmond

VA

$95,700

VERMONT FAMILY NETWORK, INC.

Williston

VT

$95,700

WASHINGTON PAVE, INC

Tacoma

WA

$95,700

FAMILY VOICES OF WISCONSIN, INC.

Madison

WI

$95,700

WEST VIRGINIA PARENT TRAINING & INFO INC

Clarksburg

WV

$95,700

UNIVERSITY OF WYOMING

Laramie

WY

$95,700

For more information, see Family-to-Family Health Information Center

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The Health Resources and Services Administration (HRSA), part of the U. S. Department of Health and Human Services, is the primary Federal agency for improving access to healthcare services for people who are uninsured, isolated, or medically vulnerable. For more information about HRSA and its programs, visit www.hrsa.gov.