Health Resources and Services Administration
Thursday, May 14, 2015
HRSA awards $5 million to support families of children with special health care needs
Medicare Access and CHIP Reauthorization Act funds support Family-to-Family Health Information Centers in all 50 states and District of Columbia
The Health Resources and Services Administration (HRSA) announced $5 million in new and continuing competitive grant awards to support Family-to-Family Health Information Centers, primarily non-profit organizations run by and for families with children and youth with special health care needs. Funding for the centers was extended through fiscal year 2017 by the Medicare Access and CHIP Reauthorization Act of 2015.
“Family-to-Family Health Information Centers served nearly one million families of children with special health care needs last year alone,” said HRSA Acting Administrator Jim Macrae. “Ninety-six percent of the families the centers served reported they were key in helping families find and navigate additional community resources and care for their children.”
The state-wide centers are staffed by trained family leaders who themselves have children with special health care needs, such as cerebral palsy, cystic fibrosis, autism, developmental delay, and other health chronic conditions, and are linked to health professionals providing care. Centers provide education, training, peer support, and expertise in navigating federal, state and local public and private health care systems for families of children and youth with special health care needs.
“In addition to providing needed support for families, last year approximately 400,000 physicians, nurses, and other health professionals tapped centers’ resources, making information regarding the needs of these children more widely available than ever before,” said HRSA Associate Administrator for the Maternal and Child Health Bureau, Michael Lu, MD, MPH.
Since the program’s inception in 2005, Family-to-Family Health Information Centers have served millions of families and health professionals nationwide. This latest round of funding supports 51 centers in all 50 states and the District of Columbia, with approximately $95,700 awarded to each center.
|Family-to-Family Health Information Centers Fiscal Year 2015 Competitive Awards|
STONE SOUP GROUP
FAMILY VOICES OF ALABAMA INC
ARKANSAS DISABILITY COALITION
RAISING SPECIAL KIDS
SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIES
PARENTS AVAILABLE TO HELP INC
ADVOCATES FOR JUSTICE AND EDUCATION INC.
DELAWARE FAMILY VOICES, INC.
FAMILY NETWORK ON DISABILITIES OF FLORIDA, INC.
PARENT TO PARENT OF GEORGIA INC
HAWAII PEDIATRIC ASSOCIATION RESEARCH & EDUCATION FOUNDATION
ACCESS FOR SPECIAL KIDS RESOURCE CENTER, INC.
IDAHO PARENTS UNLIMITED INC
ARC OF ILLINOIS, THE
FAMILY TO FAMILY INC
FAMILIES TOGETHER INC
HEALTH & FAMILY SERVICES, KENTUCKY CABINET FOR
BAYOU LAND FAMILIES HELPING FAMILIES INC
FEDERATION FOR CHILDREN WITH SPECIAL NEEDS, INC., THE
PARENTS' PLACE OF MARYLAND, INC, THE
MAINE PARENT FEDERATION INC
MICHIGAN PUBLIC HEALTH INSTITUTE
PACER CENTER INC
UNIVERSITY OF MISSOURI SYSTEM
UNIVERSITY OF SOUTHERN MISSISSIPPI
PARENTS LETS UNITE FOR KIDS
EXCEPTIONAL CHILDREN'S ASSISTANCE CENTER INC
FAMILY VOICES OF NORTH DAKOTA, INC.
NEW HAMPSHIRE COALITION FOR CITIZENS WITH DISABILITIES
STATEWIDE PARENT ADVOCACY NETWORK, INC
PARENTS REACHING OUT TO HELP INCORPORATED
FAMILY TIES OF NEVADA INC
PARENT TO PARENT OF N Y S
CHILDREN'S HOSPITAL MEDICAL CENTER
OKLAHOMA FAMILY NETWORK, INC.
OREGON HEALTH & SCIENCE UNIVERSITY
PARENT EDUCATION AND ADVOCACY LEADERSHIP CENTER
RHODE ISLAND PARENT INFORMATION NETWORK, INC.
FAMILY CONNECTION OF SOUTH CAROLINA, INC.
SOUTH DAKOTA PARENT CONNECTION INC
TENNESSEE DISABILITY COALITION
TEXAS PARENT TO PARENT
UTAH PARENT CENTER, INC.
Salt Lake City
VIRGINIA COMMONWEALTH UNIVERSITY
VERMONT FAMILY NETWORK, INC.
WASHINGTON PAVE, INC
FAMILY VOICES OF WISCONSIN, INC.
WEST VIRGINIA PARENT TRAINING & INFO INC
UNIVERSITY OF WYOMING
For more information, see Family-to-Family Health Information Center
The Health Resources and Services Administration (HRSA), part of the U. S. Department of Health and Human Services, is the primary Federal agency for improving access to healthcare services for people who are uninsured, isolated, or medically vulnerable. For more information about HRSA and its programs, visit www.hrsa.gov.