Next Meeting: Thursday, September 11, 2014 from 9:30am to 4:30pm and Friday, September 12, 2014 from 9:00am to 3:00pm.
Agenda: September 11-12 Agenda
Location: National Institutes of Health, Natcher Conference Center (Building 45), 9000 Rockville Pike, Bethesda, MD 20892. Participants have the option of viewing the meeting via webinar.
Registration: The meeting will be open to the public with in-person attendance limited to space availability. Whether attending the meeting in-person or via webinar, all participants must register in advance.
The registration deadline is Thursday, August 28, 2014, 11:59 PM Eastern Time.
For technical problems gaining access to the registration website, please email Anthony Rodell.
The Discretionary Advisory Committee on Heritable Disorders in Newborns and Children (DACHDNC) was established under the Public Health Service Act (PHS), 42 U.S.C. 217a: Advisory councils or committees. The DACHDNC will fulfill the functions previously undertaken by the former Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) established under the Section 1111 of the Public Health Service (PHS) Act, 42 U.S.C. 300b-10, as amended in the Newborn Screening Saves Lives Act of 2008 (Act).
The mission of the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children is to reduce morbidity and mortality in newborns and children who have, or are at risk for, heritable disorders.
The Committee recommends that every newborn screening program include a Uniform Screening Panel (PDF - 2 pages) that screens for 31 core disorders and 26 secondary disorders; the disorders' selection was based on the Newborn Screening: Towards a Uniform Screening Panel and System (PDF - 329 pages).
The committee advises the Secretary, U.S. Department of Health and Human Services on the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and standards. Specifically, the committee provides to the Secretary, the following:
The committee was chartered on April 24, 2013.