Next Meeting: Thursday, February 12, 2015 - Friday, February 13, 2015
Location: 5635 Fishers Lane Rockville, Maryland 20857
The meeting will be open to the public (in-person attendance limited to space availibility) and broadcast via webinar (details TBA).
The Discretionary Advisory Committee on Heritable Disorders in Newborns and Children (DACHDNC) was established under the Public Health Service Act (PHS), 42 U.S.C. 217a: Advisory councils or committees. The DACHDNC will fulfill the functions previously undertaken by the former Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) established under the Section 1111 of the Public Health Service (PHS) Act, 42 U.S.C. 300b-10, as amended in the Newborn Screening Saves Lives Act of 2008 (Act).
The mission of the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children is to reduce morbidity and mortality in newborns and children who have, or are at risk for, heritable disorders.
The Committee recommends that every newborn screening program include a Uniform Screening Panel (PDF - 2 pages) that screens for 31 core disorders and 26 secondary disorders; the disorders' selection was based on the Newborn Screening: Towards a Uniform Screening Panel and System (PDF - 329 pages).
The committee advises the Secretary, U.S. Department of Health and Human Services on the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and standards. Specifically, the committee provides to the Secretary, the following:
The committee was chartered on April 24, 2013.