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Department of Health and Human Services
Discretionary Advisory Committee on Heritable Disorders in Newborns and Children
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First Meeting

May 16-17, 2013

Day 1 Presentations

Laboratory Standards and Procedures Report

  • Susan Tanksley, PhD

Education and Training Subcommittee Report

  • Don Bailey, PhD, MEd
  • Beth Tarini, MD, MS, FAAP

Follow-up and Treatment Subcommittee Report

  • Christopher Kus, MD, MPH

Day 2 Presentation

Newborn Screening for Pompe Disease: Summary of the Condition Review Workgroup Report

  • Alex Kemper, MD, MPH, MS