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Department of Health and Human Services
Discretionary Advisory Committee on Heritable Disorders in Newborns and Children
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First Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

June 7-8, 2004: Charge to Committee, Overview of Newborn Screening Programs and Briefings

Agenda (PDF -18KB)

Minutes (PDF - 295KB)

Transcript (PDF - 1MB)

Presentations

Charge to Committee - Review of Charter (PDF - 15KB)

Federal Agency and Liaison Briefings

Monday, June 7

March of Dimes
Jennifer Howse, Ph.D., President, March of Dimes

Public Comment

LysoPlex, LLC (PDF - 35KB)

Teri Broadstreet, parent, request through Honorable Howard Coble’s office (PDF - 30KB)

Hunter’s Hope Foundation (PDF - 42KB)

Organic Acidemia Association and the National Coalition for PKU & Allied Disorders (PDF - 43KB)

Jill Fisch – Parent (PDF - 34KB)

Micki Gartzke- Parent (PDF - 66KB)

Pediatrix Screening (PDF - 20KB)

The Rand Reed Group (PDF - 60KB)

Society for Inherited Metabolic Disorders (PDF - 36KB)

Immune Deficiency Foundation (PDF - 24KB)

Persons using assistive technology may not be able to fully access information in these files. For assistance, contact comments@hrsa.gov or 888-275-4772 (TTY: 877-489-4772).