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Department of Health and Human Services
Discretionary Advisory Committee on Heritable Disorders in Newborns and Children
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Ninth Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

December 18-19, 2006: Criteria Work Group: Update on the Nominating and Review Process

Agenda (PDF - 90KB)

Minutes (PDF - 443KB)

Presentations

Criteria Work Group: Update on the Nominating and Review Process (PDF - 148KB)
Nancy S. Green, MD

Evidence-Based Review for NBS: Considering screening for additional disorders (PDF - 24KB)
Nancy S. Green, MD

Decision Analytic Evaluation of Newborn Screening Tests (PDF - 74KB)
Stephen M. Downs

Distribution of Newborn Screening Educational Materials to Primary Care Providers: Action Sheet Survey Report (PDF - 218KB)
Anne Gramiak, MPH

Lessons Learned from “Newborn Screening for Pompe Disease: A Synthesis of the Evidence” (PDF - 181KB)
Alex R. Kemper, MD, MPH, MS

Universal Screening for Metabolic Disorders Historical Context and Adverse Outcomes (PDF - 94KB)
Jeffrey P. Brosco MD PhD

Newborn Screening, Long-Term Follow-Up, and Medical Home:
Is Integration Possible?
(PDF - 684KB)
Richard Antonelli, MD, MS, FAAP

Subcommittee on Follow-Up and Treatment (PDF - 55KB)
James Figge, MD, MBA

Formula Reimbursement Workgroup (PDF - 58KB)
Jill Levy-Fisch

Education and Training Subcommittee Report (PDF - 314KB)
Gregory A. Hawkins, Ph.D.

APHL Newborn Screening Activities (PDF - 64KB)
Michael Skeels, PhD, MPH

Personalized Health Care (PDF - 116KB)

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