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Department of Health and Human Services
Discretionary Advisory Committee on Heritable Disorders in Newborns and Children
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Thirtieth Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

April 19, 2013

Presentations

Lessons Learned from EHDI That May Be Applicable to CCHD Screening (PDF - 119 KB)
Christopher Kus, MD, MPH

Accessing the Impact of NCAA Sickle Cell Trait Screening on State NBS Programs (PDF - 1 MB)
Beth Tarini, MD, MS, FAAP
Anne Azrak, BA

NBS for CCHD: Update on CDC Activities (PDF - 707 KB)
Cindy Hinton, PhD, MS, MPH

The Affordable Care Act and Impact on Individuals with Heritable Disorders (PDF - 694 KB)
Meg Comeau, MHA

Education and Training Subcommittee Report (PDF - 154 KB)
Don Bailey, PhD, MEd
Beth Tarini, MD, MS, FAAP

Laboratory Standards and Procedures Subcommittee Report (PDF - 580 KB)
Kellie Kelm, PhD

Follow-Up and Treatment Subcommittee Report (PDF - 218 KB)
Carol Greene, MD

 

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