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Department of Health and Human Services
Discretionary Advisory Committee on Heritable Disorders in Newborns and Children

Twenty-Fifth Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

Presentations 

CDC Lists Advances in Maternal and Infant Health as One of the Past Decade’s Ten Great Public Health Achievements (PPT - 1 MB)
Coleen Boyle, Ph.D., M.S.

History of the Evidence Review Process (PPT - 202 KB)
Jim Perrin, M.D.

History of the Other Work of the Committee (PPT - 1 MB)
Alex Kemper, M.D., M.P.H., M.S.

The Role of Engaging Parent/Consumers to Weigh-in/Acknowledge View Points (PPT - 424 KB)
Jana Monaco

NBS Awareness Campaign – a Report on the Media Scan (PPT - 254 KB)
Jennifer Nichols

A Tour of Baby’s First Test (PPT - 9 MB)
Sharon Terry, M.A. & Natasha Bonhomme

Newborn Screening Translational Research Network (PPT - 3 MB)
Michael Watson, Ph.D.

Regional Genetic and Newborn Screening Services Collaboratives:  Cross Regional and National Projects (PDF - 308 KB)
Barry Thompson, M.D.

Laboratory Quality Program (PPT - 1 MB)
Carla Cuthbert, Ph.D.

Subcommittee on Laboratory Standards and Procedures Report (PPT - 75 KB)
Gerard Vockley, M.D., Ph.D. & Fred Lorey, Ph.D.

Subcommittee on Education and Training Report (PPT - 1 MB)
Don Bailey, Ph.D., M.Ed. & Tracy L. Trotter, M.D.

Moving the Evidence Process Forward (PPT - 91 KB)
Alex Kemper, M.D., M.P.H., M.S.

Evidence Evaluation and Methods Workgroup:  Update on Developing a Decision Analysis Model (PPT - 97 KB)
Lisa Prosser, Ph.D.

Committee Related Work, Preparing for Transition (PPT - 144 KB)
Joseph Bocchini, M.D.

 

Persons using assistive technology may not be able to fully access information in these files. For assistance, contact the HRSA Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs, Genetic Services Branch at 301-443-1080.