The javascript used on this site for creative design effects is not supported by your browser. Please note that this will not affect access to the content on this web site.
Skip Navigation
Department of Health and Human Services
Discretionary Advisory Committee on Heritable Disorders in Newborns and Children

Twenty First Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

May 13-14, 2010: Report on Briefing paper from the Sickle Cell Disease  Carrier Screening Workgroup

Agenda (PDF - 30KB)

Minutes (PDF - 1882KB)

Transcript (PDF - 1887KB)

Presentations

NICHD SCID Newborn Screening Trial (PDF - 325KB)
Alan E. Guttmacher, M.D.

Report on Briefing paper from the Sickle Cell Disease Carrier Screening Workgroup (PDF - 402KB)
Kwaku Ohene-Frempong, M.D.

Proposed Task Force on Carrier Screening (PDF -211KB)
Sara Copeland, M.D.

Health Information Technology Workgroup Report (HITWG) (PDF - 68KB)
Sharon Terry, M.A. and Alan Zuckerman, M.D.

Newborn Screening Translational Research Network and Long-term Follow-Up Datasets (PDF - 338KB)
Michael Watson, PhD

Report from the Newborn Screening Clearinghouse's Meeting - Information and Data Collection for Newborn Screening: A National Approach (PDF - 193KB)
Sharon Terry, M.A.

Survey of State Newborn Screening Program (PDF - 487KB)
Amy Brower, Ph.D.

Report on Second Screen Study (PDF - 527KB)
Jelili Ojodu, M.P.H.

Newborn Screening Contingency Plan (PDF - 134KB)
Allison Johnson, MPA

Subcommittee on Laboratory Standards and Procedures (PDF - 69KB)
Gerard Vockley, M.D., Ph.D.

Subcommittee on Education and Training (PDF - 265KB)
Jana Monaco and Tracy L. Trotter, M.D

Subcommittee on Follow-up and Treatment (PDF - 38KB)
Coleen Boyle, Ph.D., M.S.

Systematic [Evidence] Review Questions and AC Discussions (PDF - 211KB)
James M. Perrin, MD

Evidence Review Workgroup Report: Final Report on the Candidate Nomination Hemoglobin H (PDF - 160KB)
Alex Kemper, M.D., M.P.H., M.S.

Response to Council on Bioethics' Report on Newborn Screening (PDF - 169KB)
Tracy L. Trotter, M.D.

Lysosomal Storage Diseases-Report on State Screening Practices (PDF - 338KB)
Michael Watson, Ph.D.

Future Directions for the Evidence Review Workgroup (ERW) (PDF - 65KB)
Alex Kemper, M.D., M.P.H., M.S.

Evidence Review Workgroup Report: Literature Review for Critical Cyanotic Congenital Heart Disease (CCCHD) (PDF - 89KB)
Alex Kemper, M.D., M.P.H., M.S.

Persons using assistive technology may not be able to fully access information in these files. For assistance, contact comments@hrsa.gov or 888-275-4772 (TTY: 877-489-4772).