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Recommendations & Responses from the HHS Secretary
Point-of-Care Screening
Implementing Point-of-Care Newborn Screening (PDF - 113 KB) March 9, 2012
- Response to March 9, 2012 letter RE Implementing Point-of-Care Newborn Screening (PDF - 40.9 KB) April 3, 2012
Improving Data Quality by Linking Newborn Screening to Birth Certificates
Improving Data Quality and Quality Assurance in Newborn Screening by Including the Bloodspot Screening Collection Device Serial Number on Birth Certificates (PDF - 116 KB) March 9, 2012
- Response to March 9, 2012 Letter RE Improving Data Quality in Newborn Screening by linking Newborn Screening to Birth Certificates (PDF - 40.9 KB) April 3, 2012
Critical Congenital Cyanotic Heart Disease
The Addition of Critical Congenital Cyanotic Heart Disease to the Recommended Uniform Screening Panel (PDF - 82 KB) October 15, 2010
- Response adopting recommendation to add Critical Congenital Heart Disease to the Recommended Uniform Screening Panel (PDF - 212 KB) September 21, 2011
- Response to October 15, 2010 Letter RE Critical Congenital Cyanotic Heart Disease (PDF - 75 KB) April 20, 2011
CLIAC Recommendations
Input from the SACHDNC to the CDC for the purpose of developing a MMWR guideline on the CLIAC recommendations (PDF - 99 KB) October 13, 2010
- Letter from Acting Director, Center for Disease Control and Prevention’s (CDC) Division of Laboratory Science and Standards (PDF - 333 KB) August 25, 2010
Residual Dried Blood Spot Specimens
The retention and use of residual dried blood spot specimens (PDF - 121 KB) October 13, 2010
- Response to October 13, 2010 Letter RE residual dried blood spot specimens (PDF - 51 KB) April 13, 2011
Sickle Cell Trait
Sickle Cell Trait and Disease Screening of NCAA Athletes (PDF - 61 KB) June 14, 2010
- Sickle Cell Trait & Disease screening of NCAA athletes -revisions to June 14, 2010 recommendations (PDF - 365 KB) October 11, 2010
- Response to June 14 and October 11, 2010 Letters Regarding Recommendations on Screening for Sickle Cell Disease Carriers (PDF - 37 KB) June 27, 2011
National Contingency Plan
National Contingency Plan for Newborn Screening (PDF - 30 KB) August 6, 2010
- Tab A - NBS CONPLAN Final Signed (PDF - 738 KB) July 2010
- Interim Response to August 6, 2010 RE: National Contingency Plan for Newborn Screening letter (PDF - 160 KB) September 17, 2010
- Final Response to August 6, 2010 Letter RE: National Contingency Plan for Newborn Screening letter (PDF - 40 KB) September 2, 2011
Medical Foods
Insurance Coverage of Medical Foods, Foods Modified to be Low in Protein, and Pharmacological Doses of Vitamins and Amino Acids (PDF - 26 KB) June 14, 2010
- Response to June 14, 2010 Letter RE: Insurance coverage of medical foods, foods modified to be low in protein, and pharmacological doses of vitamins and amino acids (PDF - 279 KB) December 14, 2010
- Interim Response from the Secretary to the June 14, 2010 Letter (PDF - 98 KB) July 29, 2010
Gaps in Coverage and Lack of Uniformity in Reimbursement of Medical Foods and foods that are Critical Treatments for Children and Adults Identified with Inborn Errors of Metabolism through Newborn Screening (PDF - 76 KB) May 19, 2009
- Tab A: List of State Laws (PDF - 229 KB)
- Tab B: Table of Conditions and Medical Foods (PDF - 88 KB)
- Tab C: Review of Treatment in PKU
- Response by the HHS Secretary to the April 7, 2009 Letter (PDF - 29 KB) October 2, 2009
Health Care Reform
White Paper on Health Care Reform and Public Health Newborn Screening Programs (PDF - 140 KB) March 23, 2010
- NBS and Health Care Reform White Paper ( PDF - 106 KB) March 23, 2010
- Response to March 23, 2010 Letter (PDF - 494 KB) September 23, 2010
- Interim Response from the Secretary to the March 23, 2010 Letter (PDF - 125 KB) April 20, 2010
Severe Combined Immune Deficiency
The Addition of SCID to the Uniform Panel and related T-coll Lymphocyte Deficiencies to the List of Secondary Targets as a Comprehensive Entity
(PDF - 54 KB) February 25, 2010
- Report on Newborn Screening for Severe Combined Immunodeficiency (PDF - 327 KB) May 19, 2011
- Response by the HHS Secretary to the May 19, 2011 Letter (PDF - 226 KB) July 27, 2011
Recommended Uniform Screening Panel
Adoption by All State Newborn Screening Programs of the Recommended Uniform Screening Panel (PDF - 76 KB) November 22, 2009
- Letter from the Secretary (PDF - 100 KB) January 4, 2010
- Response by the HHS Secretary to the February 25, 2010 and November 22, 2009 Letters (PDF - 45 KB) May 21, 2010
Adoption of the ACMG-Recommended Screening Panel (PDF - 444 KB) September 9, 2005
- American College of Medical Genetics (ACMG) Report on Newborn Screening (PDF - 305 KB) April 20, 2005
- Response by the HHS Secretary to the April 21, 2005, September 9, 2005 and April 4, 2007 Letters (PDF -112 KB) October 21, 2008
Committee Progress
The Committee's Progress to Date in their Evidence Review Deliberations and in Other Committee Actions (PDF -37 KB) September 1, 2009
- Response by the HHS Secretary to the September 1, 2009 Letter (PDF - 335 KB) March 1, 2010
The Committee's Progress to Date in Their Evidence Review Deliberations (PDF -88 KB) March 30, 2009
- Response by the HHS Secretary to the March 30, 2009 Letter (PDF - 111 KB) July 31, 2009
The Committee's Activities to Date (PDF -18 KB) October 2008
Prenatal Parental Education (PDF 107 KB) April 4, 2007
