We give advice and recommendations to the Secretary of the Department of Health and Human Services and Congress through letters, reports, and recommendations.
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Infantile Krabbe Disease
- Enclosure: Expedited Evidence-Based Review of Newborn Screening for Infantile Krabbe Disease Final Report – February 1, 2024 (PDF - 701 KB)
- Chair Letter to Secretary – March 1, 2024 (PDF - 182 KB)
- Secretary’s Interim Response – May 9, 2024 (PDF - 16 KB)
- Secretary’s Final Response regarding Committee’s Recommendation to add Infantile Krabbe Disease – July 1, 2024 (PDF - 58 KB)
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Letters archive
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