National Hansen's Disease (Leprosy) Registry collects data from health care providers and agencies. Data are analyzed and reported to the Centers for Disease Control and Prevention.
Hansen's Disease (Leprosy) Surveillance Form (PDF- 31 KB) on which providers report new cases to the National Hansen's Disease Program
In 2014 a total of 175 cases of Hansen's disease were reported in the U.S. In the last 30 years (1985-2014), 5,898 new cases have been reported. The number of cases reported per year peaked at 456 in 1983. In 2014, 4,758 individuals received services for Hansen's Disease through the NHDP, including those receiving medicine to cure the infection as well as a large majority who were treated for post-infection disabilities or other long -term complications of this disease.
Special reports may be generated from the registry data upon request. Those of general interest are available here and can be downloaded.
Reported U.S. vs. Foreign Born Hansen's Disease (Leprosy) Cases, 1992-2002 (PDF- 35 KB) Shows the constancy of U.S. born cases and how the number of reported Hansen's disease (leprosy) cases in the U.S. are influenced by immigration patterns.
Endemic Hansen's Disease (Leprosy) in Louisiana - 2001 (PDF- 35 KB) Summary of the 13 endemic leprosy cases reported from Louisiana in 2001.
Hansen's Disease (Leprosy) (Centers for Disease Control & Prevention)
Leprosy (National Institutes of Health)
Leprosy Elimination/Leprosy Today (World Health Organization)
The STAR, a publication educating the public on Hansen's Disease