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What are the lessons learned from existing child PHR implementations?

The use of PHRs, especially for the pediatric population, is still a relatively new endeavor.  A study published in a 2008 issue of the Journal of the American Medical Informatics Association (JAMIA) go to exit disclaimer analyzed the challenges that arose from three PHR implementations, including the Indivo PHR.  The challenges that arose from these past implementations included determining the level and breadth of health information to share with the patient through the PHR, providing the patient secure access to the PHR, deciding how the PHR should be shared and if minors should be allowed to have their own PHRs, and deciding whether or not the PHR should serve as a platform for patient-provider communication.  This study also outlined potential future challenges of the PHR, many of these focusing on the ability of the PHR to exchange information, integrate health knowledge and decision support, and facilitate communication and research.

Related Resources:

Medical Record Management for Patients with Spina Bifida During the Transition from Pediatric to Adult Care go to exit disclaimer- AMIA, PubMed

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