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H H S Department of Health and Human Services
U.S. Department of Health and Human Services
Health Information Technology and Quality

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What is a chronic disease registry?

A chronic disease registry is an information system that is designed to support organized care management. Registries are often designed for specific purposes. For example, one can get cancer registries or registries for chronic clinical conditions like diabetes and hypertension. The main purpose of a registry is to assist physicians in taking care of their patients with chronic diseases. Some specific functions that registries provide include:

  • Printed patient reports
  • Progress reports
  • Registry-generated exception reports
  • Stratified population reports


  • Chronic disease registry review (PDF - 789 KB) go to exit disclaimer- Developed by NAS Consulting Services for the California HealthCare Foundation (CHCF), this report discusses computerized disease registries and provides detailed product reviews. (2004)
  • Registries for evaluating patient outcomes: A Users Guide – AHRQ developed "Outcome Sciences, with the assistance of the Duke EPC, coordinated a group of 39 contributors and 35 reviewers to develop a handbook to serve as a guide to the design, implementation, analysis, interpretation, and evaluation of the quality of a registry for understanding patient outcomes."  This links to a summary of the handbook.
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