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Maternal & Child Health

Advisory Committee on Heritable Disorders in Newborns and Children
 

Eighth Meeting
June 5-6, 2006
Four Points Sheraton
Washington, DC

Agenda

Monday, June 5, 2006
8:30 a.m. – 9:00 a.m. Continental Breakfast (for Committee Members and Representatives)
9:00 a.m. – 9:15 a.m.

Opening Remarks and Welcome

R. Rodney Howell, M.D.
Committee Chair

Introduction of Representatives

9:15 a.m. – 10:45 a.m.

AGENCY AND FEDERAL ADVISORY COMMITTEE UPDATE ON ACTIVITIES RELEVANT TO NEWBORN SCREENING

  • NIH
    Duane Alexander, M.D., Director, National Institute of Child Health and Human Development
  • CDC
    Coleen Boyle, Ph.D., M.S., Director, Division of Birth Defects and Developmental Disabilities
  • HRSA
    Peter C. van Dyck, M.D., M.P.H., M.S., Associate Administrator, Maternal and Child Health Bureau
  • AHRQ
    Denise Dougherty, Ph.D., Senior Advisor, Child Health
  • SACIM
    James W. Collins, Jr., M.D., M.P.H., Chairman, Secretary’s Advisory Committee on Infant Mortality
  • SACGHS
    Joseph Telfair, Dr.P.H, M.P.H., M.S.W., Secretary’s Advisory Committee on Genetics, Health and Society
10:45 a.m. – 11:00 a.m.

Break
11:00 a.m. – 11:15 a.m.

STATUS OF THE STATES

Brad Therrell, Ph.D.
Director, National Newborn Screening and Genetics Resource Center

11:15 a.m. – 12:00 p.m.

FEDERAL LEGISLATIVE UPDATE

Nancy S. Green, M.D.
Medical Director, March of Dimes
12:00 p.m. – 1:00 p.m.

Working Lunch
1:00 p.m. –
2:45 p.m.

NOMINATION PROCESS FOR CANDIDATE CONDITIONS ON THE UNIFORM SCREENING PANEL

  • PRESENTATION OF PILOT STUDY
  • NEXT STEPS
    Nancy S. Green, M.D.
    Medical Director, March of Dimes
2:45 p.m. – 3:00 p.m.

Break
3:00 p.m. – 5:00 p.m.

SUBCOMMITTEE MEETINGS
5:00 p.m.

Adjourn
Tuesday, June 6, 2006
8:00 a.m. – 8:30 a.m. Continental Breakfast (for Committee Members and Representatives)
8:30 a.m. – 10:00 a.m.

SUBCOMMITTEE REPORTS AND DISCUSSION
10:00 a.m. – 10:45 a.m.

POLICIES AND PROCEDURES FOR ADVISORY COMMITTEE PRACTICES

Michele A. Lloyd-Puryear, M.D., Ph.D.
Executive Secretary, ACHDGDNC
10:45 a.m. – 11:15 a.m. Break
11:15 a.m. – 12:00 p.m.

UPDATE FROM REPRESENTATIVES TO COMMITTEE

  • THE CHILD NEUROLOGY
    Bennett Lavenstein, M.D.
    Child Neurology Society

  • DEPARTMENT OF DEFENSE
    David S. Louder, Lt Col, USAF, MC
    Chief Consultant for Maternal-Child Medicine and Pediatrics, AFMOA/SGOC

  • FOOD AND DRUG ADMINISTRATION
    Ethan Hausman, M.D.
    Medical Officer, Division of Gastrointestinal Products
    Office of New Drugs, ODE-3
    Center for Drug Evaluation and Research

12:00 p.m. – 1:00 p.m. Working Lunch
1:00 p.m. – 2:00 p.m.

Public Comments

2:00 p.m. – 3:00 p.m.

Committee Business

R. Rodney Howell, M.D.
Committee Chair
3:00 p.m. Adjourn