| MONDAY,
JANUARY 14, 2008 |
| 8:00
A.M.– 9:00 A.M. |
CONTINENTAL
BREAKFAST (Committee Members and Representatives)
|
9:00
A.M.– 9:30 A.M.
Salon F |
ETHICS
BRIEFING-NEW MEMBERS
Louise
Wagner
Ethics and Personnel Security Specialist
Health Resources and Services Administration |
| 9:30
A.M.– 10:00 A.M. |
OPENING REMARKS
R. Rodney Howell, M.D., Committee
Chair
- Approval of Minutes from September
2007 Meeting
- Approval of Minutes from November
2007 Conference Call
|
| 10:00
A.M.– 10:15 A.M. |
INTRODUCTION
OF NEW MEMBERS R.
Rodney Howell, M.D., Committee Chair
|
| 10:15
A.M.– 10:30 A.M. |
BREAK |
| 10:30
A.M.– 11:45 A.M. |
NEWBORN
SCREENING SYSTEMS: UTILIZING PARTNERSHIPS
FOR FOLLOW-UP Region
4 Collaborative: Long-Term Follow-Up
After Newborn Screening – The Inborn
Errors of Metabolism Information
System
Susan A. Berry, M.D.
Professor and Director
Division of Genetics and Metabolism
Department of Pediatrics
University of Minnesota
PEDIATRIX AND THE NEBRASKA
NEWBORN SCREENING PROGRAM
William S. Slimak
Vice President of Operations
Pediatrix Screening
Pediatrix/Obstetrix Medical Group
New England Newborn Screening Program:
Follow-up Activities for Massachusetts
and Rhode Island
Roger B. Eaton, Ph.D.,
M.S.
Director
New England Newborn Screening Program
University of Massachusetts Medical
School
Northwest Regional Newborn Screening
Program: Follow-up Activities for
the Northwest Region and the Pacific
Michael Skeels, Ph.D.,
M.P.H.
Committee Member
|
| 11:45
A.M. – 12 NOON. |
LEGISLATIVE
UPDATE: MARCH OF DIMES
Emil Wigode
Director, Federal Affairs
Office of Government Affairs
March of Dimes
|
| 12:00 NOON – 1:00
P.M. |
LUNCH |
| 1:00 P.M. – 1:30
P.M. |
PERSONALIZED
HEALTH CARE WORKGROUP: UPDATE ON SUBGROUP
ON NEWBORN SCREENING
Stephen M. Downs, M.D., M.S.
Co-Chair, Subgroup on Newborn Screening
Associate Professor and Director
Children's Health Services Research
Indiana University School of Medicine
|
| 1:30 P.M.
– 5:00 P.M. |
SUBCOMMITTEE
AND WORKGROUP SESSIONS
- Subcommittee on Laboratory
Standards and Procedures
Brookside A Room
- Subcommittee on Education
and Training
Brookside B Room
- Subcommittee on Follow-up
and Treatment
Linden Oak Room
|
| 5:00
P.M. |
ADJOURN |
| TUESDAY, JANUARY
15, 2008 |
| 8:00
A.M. – 8:30 A.M. |
CONTINENTAL
BREAKFAST (COMMITTEE MEMBERS AND REPRESENTATIVES)
|
| 8:30 A.M. – 10:30
A.M. |
SUBCOMMITTEE
REPORTS AND DISCUSSION
- Subcommittee on Laboratory
Standards and Procedures
- Subcommittee on Education
and Training
- Subcommittee on Follow-up
and Treatment
|
| 10:30 A.M. – 10:45
A.M. |
BREAK |
| 10:45 A.M. – 11:15
A.M. |
SECRETARY’S
ADVISORY COMMITTEE ON GENETICS, HEALTH,
AND SOCIETY- ASSESSMENT OF THE IMPACT
OF PATENTS ON ACCESS TO TESTS IN BOTH
CLINICAL PRACTICE AND PUBLIC HEALTH
SETTINGS James
P. Evans, M.D., Ph.D.
Chair, SACGHS Task Force
on Gene Patents and Licensing Practices
Professor of Genetics and Medicine
Director of Clinical Cancer Genetics
and the Bryson Program in Human
Genetics
Departments of Medicine & Genetics
University of North Carolina at
Chapel Hill |
| 11:15 A.M. – 12:15
P.M. |
EVIDENCE REVIEW
WORKGROUP: NOMINATION AND EVALUATION
PROCESS FOR CONDITIONS ON THE UNIFORM
SCREENING PANEL
James Perrin, M.D
Professor of Pediatrics, Harvard
Medical School
Director,
Division of General Pediatrics
Director, Center for Child and Adolescent
Health Policy,
Harvard Medical School
MassGeneral Hospital for Children
Nancy S. Green, M.D.
Divison of Pediatric Hematology
Associate Dean for Clinical Reseach
Operations
Columbia University Medical Center
|
| 12:15 P.M. – 12:30
P.M. |
HRSA
REVIEW PROCESS Marie
Mann, M.D., M.P.H.
Genetic Services Banch
Maternal and Child Health Bureau
Health Resources and Services Administration
|
| 12:30 P.M. – 1:30
P.M. |
LUNCH |
| 1:30 P.M. – 2:00 P.M. |
PUBLIC COMMENTS |
| 2:00 P.M. – 3:00 P.M. |
COMMITTEE BUSINESS
R. Rodney Howell, M.D., Committee
Chair
- Agenda Items for May
2008 Meeting
- Calendar for 2008 Meetings
|
| 3:00 P.M. |
ADJOURN |
