HRSA awards $5 million to support families of children with special health care needs

U.S. Department of Health & Human Services
Health Resources and Services Administration
FOR IMMEDIATE RELEASE
Thursday, May 14, 2015
CONTACT: HRSA PRESS OFFICE
301-443-3376
 

Medicare Access and CHIP Reauthorization Act funds support Family-to-Family Health Information Centers in all 50 states and District of Columbia

The Health Resources and Services Administration (HRSA) announced $5 million in new and continuing competitive grant awards to support Family-to-Family Health Information Centers, primarily non-profit organizations run by and for families with children and youth with special health care needs. Funding for the centers was extended through fiscal year 2017 by the Medicare Access and CHIP Reauthorization Act of 2015.

“Family-to-Family Health Information Centers served nearly one million families of children with special health care needs last year alone,” said HRSA Acting Administrator Jim Macrae. “Ninety-six percent of the families the centers served reported they were key in helping families find and navigate additional community resources and care for their children.”

The state-wide centers are staffed by trained family leaders who themselves have children with special health care needs, such as cerebral palsy, cystic fibrosis, autism, developmental delay, and other health chronic conditions, and are linked to health professionals providing care. Centers provide education, training, peer support, and expertise in navigating federal, state and local public and private health care systems for families of children and youth with special health care needs.

“In addition to providing needed support for families, last year approximately 400,000 physicians, nurses, and other health professionals tapped centers’ resources, making information regarding the needs of these children more widely available than ever before,” said HRSA Associate Administrator for the Maternal and Child Health Bureau, Michael Lu, MD, MPH.

Since the program’s inception in 2005, Family-to-Family Health Information Centers have served millions of families and health professionals nationwide. This latest round of funding supports 51 centers in all 50 states and the District of Columbia, with approximately $95,700 awarded to each center.

Family-to-Family Health Information Centers Fiscal Year 2015 Competitive Awards

Grantee Organization

City

State

Award Amount

STONE SOUP GROUP Anchorage AK $95,700
FAMILY VOICES OF ALABAMA INC Mobile AL $95,700
ARKANSAS DISABILITY COALITION Little Rock AR $95,700
RAISING SPECIAL KIDS Phoenix AZ $95,700
SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIES San Francisco CA $95,700
HIGHPOINTE CENTER Centennial CO $95,700
PARENTS AVAILABLE TO HELP INC North Haven CT $95,700
ADVOCATES FOR JUSTICE AND EDUCATION INC Washington DC $95,700
DELAWARE FAMILY VOICES, INC Wilmington DE $95,700
FAMILY NETWORK ON DISABILITIES OF FLORIDA, INC Dunedin FL $95,700
PARENT TO PARENT OF GEORGIA INC Atlanta GA $95,700
HAWAII PEDIATRIC ASSOCIATION RESEARCH & EDUCATION FOUNDATION Honolulu HI $95,700
ACCESS FOR SPECIAL KIDS RESOURCE CENTER, INC Johnston IA $95,700
IDAHO PARENTS UNLIMITED INC Boise ID $95,700
THE ARC OF ILLINOIS Frankfort IL $95,700
FAMILY TO FAMILY INC Indianapolis IN $95,700
FAMILIES TOGETHER INC Wichita KS $95,700
KENTUCKY CABINET FOR HEALTH & FAMILY SERVICES Louisville KY $95,700
BAYOU LAND FAMILIES HELPING FAMILIES INC Thibodaux LA $95,700
THE FEDERATION FOR CHILDREN WITH SPECIAL NEEDS, INC. Boston MA $95,700
THE PARENTS' PLACE OF MARYLAND, INC Glen Burnie MD $95,700
MAINE PARENT FEDERATION INC Farmingdale ME $95,700
MICHIGAN PUBLIC HEALTH INSTITUTE Okemos MI $95,700
PACER CENTER INC Minneapolis MN $95,700
UNIVERSITY OF MISSOURI SYSTEM Kansas City MO $95,700
UNIVERSITY OF SOUTHERN MISSISSIPPI Hattiesburg MS $95,700
PARENTS LETS UNITE FOR KIDS Billings MT $95,700
EXCEPTIONAL CHILDREN'S ASSISTANCE CENTER INC Davidson NC $95,700
FAMILY VOICES OF NORTH DAKOTA, INC. Edgeley ND $95,700
PTI NEBRASKA Omaha NE $95,700
NEW HAMPSHIRE COALITION FOR CITIZENS WITH DISABILITIES Concord NH $95,700
STATEWIDE PARENT ADVOCACY NETWORK, INC Newark NJ $95,700
PARENTS REACHING OUT TO HELP INCORPORATED Albuquerque NM $95,700
FAMILY TIES OF NEVADA INC Reno NV $95,700
PARENT TO PARENT OF N Y S Tupper Lake NY $91,450
CHILDREN'S HOSPITAL MEDICAL CENTER Cincinnati OH $95,700
OKLAHOMA FAMILY NETWORK, INC. Oklahoma City OK $95,700
OREGON HEALTH & SCIENCE UNIVERSITY Portland OR $95,700
PARENT EDUCATION AND ADVOCACY LEADERSHIP CENTER Pittsburgh PA $95,700
RHODE ISLAND PARENT INFORMATION NETWORK, INC Cranston RI $95,700
FAMILY CONNECTION OF SOUTH CAROLINA, INC Columbia SC $95,700
SOUTH DAKOTA PARENT CONNECTION INC Sioux Falls SD $95,700
TENNESSEE DISABILITY COALITION Nashville TN $95,700
TEXAS PARENT TO PARENT Austin TX $95,700
UTAH PARENT CENTER, INC Salt Lake City UT $95,700
VIRGINIA COMMONWEALTH UNIVERSITY Richmond VA $95,700
VERMONT FAMILY NETWORK, INC Williston VT $95,700
WASHINGTON PAVE, INC Tacoma WA $95,700
FAMILY VOICES OF WISCONSIN, INC Madison WI $95,700
WEST VIRGINIA PARENT TRAINING & INFO INC Clarksburg WV $95,700
UNIVERSITY OF WYOMING Laramie WY $95,700

For more information, see Family-to-Family Health Information Center

###

The Health Resources and Services Administration (HRSA), part of the U. S. Department of Health and Human Services, is the primary Federal agency for improving access to healthcare services for people who are uninsured, isolated, or medically vulnerable. For more information about HRSA and its programs, visit www.hrsa.gov.

Date Last Reviewed:  January 2019