U.S. Department of Health & Human Services
Health Resources and Services Administration
Tuesday, May 17, 2011
(301) 443-3376

HHS awards $4.9 million to support families of children with special health care needs

HHS Secretary Kathleen Sebelius today announced $4.9 million in new and continuing grants to support the Family-to-Family Health Information Centers, primarily non-profit organizations run by and for families with children with special health care needs. Funding for the centers was extended through 2012 by the Affordable Care Act.

Created in 2005, the centers are state-wide, family-led organizations that provide information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.

“In the last year, the work of these Family to Family Health Information Centers has had a real impact on the families, and community and state systems that serve them,” said Secretary Sebelius.  “After working with these Centers, more than 90 percent of the families surveyed,  reported they were helped in finding or navigating community services for their children with special health care needs.”

The Family-to-Family Health Information Centers are staffed by trained family leaders who have children with special health care needs, and expertise in navigating federal, state and local public and private health care systems. These Centers are also staffed by and/or linked with health professionals. HHS’ Health Resources and Services Administration (HRSA) oversees the program.

“More than 900,000 families of children with special health care needs were served at Centers in the past year,” said HRSA Administrator Mary Wakefield, Ph.D., R.N.  “And over 400,000 providers and other professionals were able to benefit from their services, making invaluable information regarding the needs of these children more widely available than ever before.”

Since the program’s inception, Family-to-Family Health Information Centers have served hundreds of thousands of families and health care providers.  Today’s funding will support 51 centers, of which six are newly HRSA-supported (Delaware, the District of Columbia, Connecticut, Florida, Indiana, and Oregon).  Each grant award is up to $95,700 per year.

Family-to Family Health Centers
Fiscal Year 2011 Competitive Awards

Raising Special KidsPhoenixAriz.
Support for Families of Children w/ DisabilitiesSan FranciscoCalif.
Colorado Nonprofit Development CenterDenverColo.
PATH Parent to Parent/Family Voices of CTNorthfordConn.
Advocates for Justice and Education, Inc.WashingtonDC
Delaware Family Voices, Inc.New CastleDel.
Family Network on Disabilities of Florida, Inc.DunedinFla.
Parent to Parent of Georgia, Inc.AtlantaGa.
Hawaii Pediatric Association Research & Education FoundationHonoluluHawaii
The Arc of IllinoisFrankfortIll.
Family Voices IndianaGrangerind.
Families Together, Inc.WichitaKan.
Bayou Land Families Helping FamiliesThibodauxLa.
Federation for Children with Special NeedsRoxbury CrossingMass.
The Parent's Place of MarylandGlen BurnieMd.
Maine Parent FederationAugustaMaine
PACER Center Inc.MinneapolisMinn.
Curators, University of MissouriKansas CityMo.
University of Southern MississippiHattiesburgMiss.
Parents, Let's Unite for KidsBillingsMont.
Exceptional Children's Assistance CenterDavidsonN.C.
Family Voices of North Dakota, IncEdgeleyN.D.
PTI NebraskaOmahaNeb.
NH Coalition for Citizens w/DisabilitiesConcordN.H.
Statewide Parent Advocacy Network of New JerseyNewarkN.J.
Parents Reaching Out to HelpAlbuquerqueN.M.
Family TIES of Nevada, IncRenoNev.
Parent to Parent of NYSTupper LakeN.Y.
The Oklahoma Family Network, Inc.Oklahoma CityOkla.
Oregon Health and Science UniversityPortlandOre.
Parent Education & Advocacy Leadership CenterPittsburghPa.
Rhode Island Parent Information Network, Inc.CranstonR.I.
South Dakota Parent Connection, Inc.Sioux FallsS.D.
Tennessee Disability CoalitionNashvilleTenn.
Texas Parent to ParentAustinTexas
Utah Parent CenterSalt Lake CityUtah
Virginia Commonwealth UniversityRichmondVa.
Vermont Family NetworkWillistonVt.
Washington PAVETacomaWash.
The Arc Wisconsin Disability AssociationMadisonWis.

Non-Competitive Awards

Stone Soup GroupAnchorageAlaska
Family Voices of Alabama Inc.MobileAla.
Arkansas Disability CoalitionLittle RockArk.
The University of IowaIowa CityIowa
Idaho Parents Unlimited Inc.BoiseIdaho
Comm for Children w/ Special Health Care NeedsLouisvilleKy.
Family Voices of OhioColumbusOhio
Family Connection of South Carolina, Inc.ColumbiaS.C.
West Virginia Parent Training and Information, Inc.ClarksburgW.Va.
Parents Helping Parents of Wyoming, IncBuffaloWyo.


For more information on the program, and other HRSA maternal and child health programs, visit http://www.mchb.hrsa.gov/.  For additional information on the Affordable Care Act, visit http://www.healthcare.gov/index.html.


The Health Resources and Services Administration (HRSA), part of the U. S. Department of Health and Human Services, is the primary Federal agency for improving access to health care services for people who are uninsured, isolated, or medically vulnerable. For more information about HRSA and its programs, visit www.hrsa.gov.