Heritable Disorders - 2018 New Members

HRSA is seeking nominations of qualified candidates to be considered for appointment as voting members of the Advisory Committee on Heritable Disorders in Newborns and Children (Committee).

Interested applicants may self-nominate or be nominated by another individual and/or organization. Nomination materials must be received by April 30, 2018.

Nominations are being sought to fill up to three Committee positions. Nominees must reside in the United States. The Secretary appoints Committee members with the expertise needed to fulfill the duties of the Advisory Committee established under section 1111(b) of the Public Health Service (PHS) Act, as amended by the Newborn Screening Saves Lives Reauthorization Act of 2014 (Act) (42 U.S.C. § 300b-10(b)). Areas of expertise include:

  • Medical, technical, public health, or scientific professionals with special expertise in the field of heritable disorders or in providing screening, counseling, testing, or specialty services for newborns and children at risk for heritable disorders; and/or
  • Experts in ethics (i.e., bioethics) and infectious diseases and who have worked and published material in the area of newborn screening; and/or
  • Members of the public having special expertise about or concern with heritable disorders; and/or
  • Members from such federal agencies, public health constituencies, and medical professional societies as determined to be necessary by the Secretary.

To be considered for appointment the following information must be submitted:

  1. A statement that clearly states the name and affiliation of the nominee, the basis for the nomination (i.e., specific attributes such as expertise in bioethics, evidence review, public health, laboratory, maternal and child health, or clinical expertise in heritable disorders, which qualify the nominee for service in this capacity), and that the nominee is willing to serve as a member of the Committee;
  2. The nominee’s name, address, and daytime telephone number and the home/or work address, telephone number, and email address; and
  3. A current copy of the nominee’s curriculum vitae.

Submit all required information electronically as email attachments to Ms. Alaina Harris, Genetic Services Branch, Maternal and Child Health Bureau, HRSA, no later than Monday, April 30, 2018

For information on the nomination process, roles and responsibilities of Committee members, and areas of expertise needed to fulfill the duties of the Committee, please access the federal register notice.

For other questions, please contact Ms. Alaina Harris.

Date Last Reviewed:  April 2018