November 3, 2015 Meeting

Agenda (PDF - 140 KB

Meeting Minutes (PDF - 420 KB)

Meeting Archives and Transcripts


Opening Remarks, ACHDNC Business & Priorities
Joseph Bocchini, MD
Committee Chair; Louisiana State University
Debi Sarkar, MPH
Designated Federal Official, Health Resources and Services Administration

Overview of the Implications of the Federal Policy for the Protection of Human Subjects Notice of Proposed Rulemaking for Newborn Screening
Michelle Huckaby Lewis, MD, JD
Research Scholar
Berman Institute of Bioethics
Johns Hopkins University

Transition Models from Pediatric to Adult Health Care: Innovative Strategies
Patience White, MD, MA
Co-Project Director
Got Transition/Center for Health Care Transition

Raising Awareness in Newborn Screening: Strategies and Updates
Natasha Bonhomme
Vice President of Strategic
Genetic Alliance

Workgroup Update - Pilot Study Workgroup
Jeff Botkin, MD, MPH
Committee Member
University of Utah

Workgroup Update - Cost Analysis Workgroup
Alex Kemper, MD, MPH, MS
Condition Review Workgroup
Duke Clinical Research Institute and Department 
of Pediatrics

Workgroup Update - Timeliness Workgroup
Kellie Kelm, PhD
Ex-Officio Member
Food and Drug Administration
Cathy Wicklund, MS, CGC
Committee Member Northwestern University

Date Last Reviewed:  June 2017