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February 11-12, 2016 Meeting

Agenda (PDF - 185 KB)

Meeting Minutes (PDF - 571 KB)

Webcasts

Transcripts

Day 1

Committee Related Work (PDF - 2.6 MB)
Joseph Bocchini, MD
Committee Chair
Louisiana State University
 
California Newborn Screening Long-Term Follow-Up Data Collection (PDF - 187 KB)
Lisa Feuchtbaum, DrPH, MPH
Chief, Program Development & Evaluation Section
Genetic Disease Screening Program
California Department of Public Health
 
Long-Term Follow-Up after Newborn Bloodspot Screening: Why, How, and What Next? (PDF - 575 KB)
Sue Berry, MD
Professor and Director
Department of Pediatrics and Genetics, Cell Biology & Development
University of Minnesota
 
The Parent Perspective on Long-Term Follow-Up (PDF - 566 KB)
Christine Brown
Executive Director
National PKU Alliance
 
ACHDNC Subcommittee Charges (PDF - 1.5 MB)
Joseph Bocchini, MD
Committee Chair
Louisiana State University

Day 2

Laboratory Procedures and Standards Subcommittee Update (PDF - 34 KB)
Kellie Kelm, PhD
Ex-Officio Committee Member
Food and Drug Administration
 
Education and Training Subcommittee Update (PDF - 172 KB)
Cathy Wicklund, MS, CGC
Committee Member
Northwestern University
 
Follow-up and Treatment Subcommittee Update (PDF - 62 KB)
Stephen McDonough, MD
Committee Member
 
Timeliness 2.0 (PDF - 118 KB)
Kellie Kelm, PhD
Ex-Officio Member
Food and Drug Administration
and
Cathy Wicklund, MS, CGC
Committee Member Northwestern University
 
Cost Analysis Workgroup Update (PDF - 413 KB)
Alex Kemper, MD, MPH, MS
Condition Review Workgroup
Duke Clinical Research Institute and Department of Pediatrics
 
Pilot Studies Workgroup Update (PDF - 585 KB)
Jeff Botkin, MD, MPH
Committee Member
University of Utah
 
Persons using assistive technology may not be able to fully access information in this file. For assistance, please email Alaina Harris at aharris@hrsa.gov

Date Last Reviewed:  June 2017