Charter (PDF - 766 KB)
Membership (PDF - 371 KB)
Public Health Service Act 42 U.S.C. 217a (PDF - 52 KB)
The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) may invite up to 15 organizations to serve as Organizational Representatives. These organizations should have wide-ranging newborn screening and heritable disorders interests. In addition, their work should inform the activities of the ACHDNC.
Eligible organizations must represent national public health constituencies, medical professional societies, or consumer/family advocacy organizations with large, broad constituencies. Only organizations with broad interest or involvement in newborn screening are eligible and only if it is deemed that representation is necessary to effectively carry out the functions of the ACHDNC.
Organizational Representatives participate in ACHDNC meetings to provide relevant expertise and perspectives to committee members during their deliberations and discussions. Organizational Representatives do not vote and are not considered official members of the ACHDNC.
Organizations eligible to be Organizational Representatives include:
Organizations which represent more narrow interests such as interest in a single disease or treatment, or small constituencies, are not eligible to be appointed as ACHDNC Organizational Representatives.
An organization is eligible to serve as long as the organization's area of expertise and mission are relevant to the Committee's purpose, objective, scope of activities, and duties, and as long as the organization actively participates on Committee activities. Organizations are expected to cover the cost of travel for their designated representative to all in-person ACHDNC meetings.
Every three years, the Chair and Designated Federal Official will re-assess the organizations' subject area of expertise, mission, relevancy, and benefit provided as they relate to the ACHDNC's purpose, objective, scope of activities, and duties.
Every three years organizations will be asked to reaffirm their commitment to being an ACHDNC Organizational Representative.
Currently, there are three openings.
Interested Organizations are requested to submit a written application to the ACHDNC Designated Federal Official, Debi Sarkar, MPH, at firstname.lastname@example.org. Applications must contain the following:
The selection of Organizational Representatives is based on a review of the organization's subject area of expertise, mission, relevancy, and benefit provided relative to the ACHDNC's purpose. Read the ACHDNC Charter, Legislation, and a list of the current voting membership. Final selection of Organizational Representatives will be made by the Committee Chair and Designated Federal Official.
Catharine Riley, PhD, MPH
Designated Federal Official
Genetic Services Branch
Maternal and Child Health Bureau
Health Resources and Services Administration