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Department of Health and Human Services
Advisory Committee on Heritable Disorders in Newborns and Children
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Fourth Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

Agenda (PDF - 31KB)

Minutes (PDF - 210KB)

Comments (PDF - 385KB)

Transcript (PDF - 921KB)


Survey of States for Policies and Procedures for Public and Professional Education (PDF - 352KB)
Presenter: Donna C. Williams

Informing Parents About Newborn Screening:Hidden Problems, Practical Solutions (PDF - 1621KB)
Presenter: Terry Davis, Ph.D.

Sickle Cell Disease Newborn Screening Education Project (PDF - 17MB)
Janet Ohene-Frempong, MS

Performance Evaluation and Assessment Scheme (PDF - 341KB)
Presenter: Brad Therrell, Ph.D.

Introduction: Two Projects Focused on Follow-up in Newborn Screening (PDF - 440KB)
Presenter: Robert F. Vogt, Ph.D.

CLSI NBS Follow-up Guidelines Sub-Committee (PDF - 785KB)
Presenter: Judith Tuerck, R.N., M.S.

Subcommittee on Treatment and Follow up (PDF - 109KB)
Presenter: Coleen Boyle, Ph.D., M.S.

Laboratory Standards & Procedures Subcommittee (PDF - 116KB)
Presenter: Amy Brower, Ph.D.

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