The javascript used on this site for creative design effects is not supported by your browser. Please note that this will not affect access to the content on this web site.
Skip Navigation
Department of Health and Human Services
Advisory Committee on Heritable Disorders in Newborns and Children
  • Print this
  • Email this

Tenth Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

May 17-18, 2007: The Road Map To Implement Long-Term Follow-up And Treatment In Newborn Screening

Agenda (PDF - 37KB)

Minutes (PDF - 349KB) 

Transcript (PDF - 589KB)


Evidence-Based Reviews for Newborn Screening (PDF - 41KB)
James Perrin, M.D.

Adaptive Turnaround Documents, Newborn Screening and the Medical Home (PDF - 1760KB)
Stephen M. Downs, M.D., M.S

Long-Term Follow-up of Newborn Screening: Definitions and Models (PDF - 106KB)
Alex Kemper, M.D., M.P.H., M.S.

NIH Newborn Screening Research Activities (PDF - 79KB)
Gilian H. Engelson, M.P.H.

SERGG/Region 3 Long Term Follow-Up, An Overview (PDF - 246KB)
Rani Singh, Ph.D., R.D.

SERGG Sickle Cell Initiatives (PDF - 484KB)
James Eckman, M.D.

Newborn Screening: Current Status of State Newborn Screening Programs (PDF - 511KB)
Bradford Therrell, Ph.D.

Department of Defense Newborn Screening Program (PDF - 339KB)
Lt. Col. David S. Louder, III, M.D.

Subcommittee on Follow-up and Treatment (PDF - 64KB)
Coleen Boyle, Ph.D., M.S.

Region 4 Collaborative Project Laboratory Quality Improvement (Newborn Screening by MS/MS) (PDF - 2773KB)
Piero Rinaldo, M.D., Ph.D.

Mountain States Genetics Regional Collaborative Center Laboratory Quality Assurance Exchange of Blood Spots for Educational Purposes to Improve Quality of Newborn Screening by MS/MS.PI (PDF - 77KB)
Marzia Pasquali, Ph.D., F.A.C.M.G.

Persons using assistive technology may not be able to fully access information in these files. For assistance, contact or 888-275-4772 (TTY: 877-489-4772)