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Department of Health and Human Services
Advisory Committee on Heritable Disorders in Newborns and Children
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Twenty-Fifth Meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children


CDC Lists Advances in Maternal and Infant Health as One of the Past Decade’s Ten Great Public Health Achievements (PDF - 229 KB)
Coleen Boyle, Ph.D., M.S.

History of the Evidence Review Process (PDF - 230 KB)
Jim Perrin, M.D.

History of the Other Work of the Committee (PDF - 631 KB)
Alex Kemper, M.D., M.P.H., M.S.

The Role of Engaging Parent/Consumers to Weigh-in/Acknowledge View Points (PDF - 738 KB)
Jana Monaco

NBS Awareness Campaign – a Report on the Media Scan (PDF - 394 KB)
Jennifer Nichols

A Tour of Baby’s First Test (PDF -  340 KB)
Sharon Terry, M.A. & Natasha Bonhomme

Newborn Screening Translational Research Network (PDF - 2.8 MB)
Michael Watson, Ph.D.

Regional Genetic and Newborn Screening Services Collaboratives:  Cross Regional and National Projects (PDF - 308 KB)
Barry Thompson, M.D.

Laboratory Quality Program (PDF - 831 KB)
Carla Cuthbert, Ph.D.

Subcommittee on Laboratory Standards and Procedures Report (PDF - 272 KB)
Gerard Vockley, M.D., Ph.D. & Fred Lorey, Ph.D.

Subcommittee on Education and Training Report (PDF - 901 KB)
Don Bailey, Ph.D., M.Ed. & Tracy L. Trotter, M.D.

Moving the Evidence Process Forward (PDF - 273 KB)
Alex Kemper, M.D., M.P.H., M.S.

Evidence Evaluation and Methods Workgroup:  Update on Developing a Decision Analysis Model (PDF - 425 KB)
Lisa Prosser, Ph.D.

Committee Related Work, Preparing for Transition (PDF - 7.2 MB)
Joseph Bocchini, M.D.


Persons using assistive technology may not be able to fully access information in these files. For assistance, contact the HRSA Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs, Genetic Services Branch at 301-443-1080.