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May 9-10, 2016 Meeting

Agenda (PDF - 163 KB)

Meeting Minutes(PDF - 3.12 MB)



Day 1

Opening Remarks and Committee Correspondence (PDF - 3.4 MB)
Joseph Bocchini, MD
Committee Chair
Louisiana State University

Medical Foods for Inborn Errors of Metabolism (PDF - 2.7 MB)
Kathryn Camp, MS, RD, CSP(C)
Office of Dietary Supplements
National Institutes of Health

Pilot Study Workgroup - Report (248 KB)
Jeff Botkin, MD, MPH
Committee Member
University of Utah

Guanidinoacetate methyltransferase deficiency (GAMT) - Update from the Nomination and Priotization Workgroup (PDF 1.5 MB) 
Dieter Matern, MD, PhD
Committee Member
Mayo Clinic

Day 2

Prenatal Education about Newborn Screening and Dried Bloodspots (PDF - 2.7 MB)
Jeff Botkin, MD, MPH
Committee Member
University of Utah

Cost Analysis Workgroup Update (PDF - 887 KB)
Alex Kemper, MD, MPH, MS
Condition Review Workgroup
Duke Clinical Research Institute and Department of Pediatrics

Follow-up and Treatment Subcommittee Update (PDF - 237 KB)
Stephen McDonough, MD
Committee Member

Timeliness Workgroup Update (PDF - 722 KB)
Kellie Kelm, PhD
Ex-Officio Member
Food and Drug Administration
Cathy Wicklund, MS, CGC
Committee Member Northwestern University

Education and Training Subcommittee Update (PDF - 210 KB)
Cathy Wicklund, MS, CGC
Committee Member
Northwestern University

Laboratory Procedures and Standards Subcommittee Update (PDF - 547 KB)
Kellie Kelm, PhD Chair
Ex-Officio Committee Member
Food and Drug Administration

Persons using assistive technology may not be able to fully access information in these files. For assistance, please contact Alaina Harris (aharris@hrsa.gov).

Date Last Reviewed:  June 2017