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August 6-7, 2020 Information Session

Presentations

August 6, 2020

Overview of the ACHDNC’s Review Process (PDF - 596 KB)
Alex R. Kemper, MD, MPH, MS
Lead, Evidence-based Reviews

Considerations for Assessing Values in Newborn Screening Decision Making (PDF - 364 KB)
Alex R. Kemper, MD, MPH, MS
Lead, Evidence-based Reviews

August 7, 2020

Newborn Screening Implementation for Spinal Muscular Atrophy (PDF - 1.18 MB)
Alex R. Kemper, MD, MPH, MS
Lead, Evidence-based Reviews

Newborn Screening Timeliness (PDF - 629 KB)
Alex R. Kemper, MD, MPH, MS
Lead, Evidence-based Reviews

Panel: Impact of COVID-19 on State Newborn Screening Programs: Challenges, Responses and Looking Ahead

Jelili Ojodu, MPH (PDF - 254 KB)
Director
Newborn Screening and Genetics
Association of Public Health Laboratories

Karl R. White, PhD (PDF - 6.48 MB)
Director
National Center for Hearing Assessment and Management

Natasha F. Bonhomme (PDF - 1.63 MB)
Chief Strategy Officer
Genetic Alliance

Organizational Representative

American Academy of Pediatrics (PDF - 439 KB)

American College of Medical Genetics & Genomics (PDF - 1.72 MB)

Association of Maternal & Child Health Programs (PDF - 231 KB)

Association of Public Health Laboratories (PDF - 254 KB)

Genetic Alliance (PDF - 908 KB)

National Society of Genetic Counselors (PDF - 495 KB)

 

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Date Last Reviewed:  October 2020