The committee was terminated as of March 2025. This page is no longer active. Information on this page is provided for historical and archival purposes only. For information on conditions added to the RUSP, visit https://mchb.hrsa.gov/programs/newborn-screening.

Resources

Educational Resources

Communication Guide (PDF - 289 KB): A communication guide for clinicians and providers to help frame the initial notification and discussion with parents about positive/abnormal/out-of-range newborn screening results.

Educational Planning Guide (PDF - 85 KB)*: The Newborn Screening Educational Planning Guide to help newborn screening programs to develop and improve their educational resources.

*Individuals using assistive technology may not be able to fully access information in this file. For assistance, please email HRSAAccessibility@hrsa.gov.

Date Last Reviewed:

November 2018