Reports to Congress
Other Committee Reports
The Federal Advisory Committee on Heritable Disorders in Newborns and Children periodically produces white papers and reports to the Secretary of the U.S. Department of Health and Human Services. Along with providing their recommendations, these reports and papers address the mission of the Committee, to reduce morbidity and mortality in newborns and children who have, or are at risk for, heritable disorders.
Report and Recommendations of the Pilot Studies Workgroup (PDF - 541 KB)
Decision-making Process for Conditions Nominated to the Recommended Uniform Screening Panel: Statement of the US Department of Health and Human Services Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children
A blueprint for maternal and child health primary care physician education in medical genetics and genomic medicine: Recommendations of the United States Secretary for Health and Human Services Advisory Committee on Heritable Disorders in Newborns and Children
Long-term follow-up after diagnosis resulting from newborn screening: statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children
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