Update on Lung Continuous Distribution Policy

Current policy

Every lung transplant candidate receives an individualized lung Composite Allocation Score (CAS). This score determines priority for receiving a lung transplant when donor lung(s) become available. The lung CAS is individual for each candidate and each organ offer. The lung CAS point values represent each of the factors used to match organ offers with transplant candidates (Exhibit 1). The people who have the highest number of points for that organ offer will have the highest priority.  

In October 2025, the Health Resources and Services Administration’s (HRSA) preliminary analyses documented a rise in allocation out of OPTN sequence (AOOS) that correlates with the implementation of the lung continuous distribution policy in 2023. In response, the OPTN Board of Directors considered potential changes to lung allocation to promote policy compliance and reduce AOOS

Note: Certain changes described in this proposal were previously implemented following emergency action by the OPTN Board of Directors and are currently in effect while the proposal proceeds through the formal policy process.

Supporting media

Remote Video URL

Exhibit 1. Current Lung Composite Allocation Score 

Attribute Definition % of Available Points 
Waiting List Survival Expected 1-year waiting list survival 25
Post-Transplant Outcomes Expected 5-year post-transplant survival 25 
Candidate Biology Total of ABO, CPRA, and height points 15 
ABO Based on percentage of compatible donors by blood type 
CPRA Based on percentage of compatible donors by CPRA 
Height Based on percentage of compatible donors by height 
Patient Access Total of pediatric and prior living donor points 25 
Pediatric For candidates under 18 years old 20 
Prior Living Donor For candidates who donated any organ 
Placement Efficiency Total of travel and proximity efficiency points 10 
Travel Efficiency Based on impact of distance on costs of travel 
Proximity Efficiency Based on impact of distance on other efficiency (time, availability, etc.) 

Note. Total Score = Waiting List Survival + Post-Transplant Outcomes + Candidate Biology + Patient Access + Placement Efficiency 

Acronyms. ABO=ABO blood group system, CPRA=Calculated Panel Reactive Antibody 

Proposed changes

  • Increasing the weight on placement efficiency from 10% to 15% of the overall score. 
  • Reducing the weight on all other parts of the score proportionally, including points assigned to pediatric candidates less than 12 years old for waitlist survival and post-transplant outcomes. 
  • Replacing the existing travel efficiency and proximity efficiency rating scales with a single placement efficiency rating scale to assign points to potential transplant recipients based on the nautical mile distance between the donor hospital and the transplant hospital.
  • Lung CAS scores for all lung and heart-lung candidates on the waiting list will be updated to reflect the changes to the lung CAS (Exhibit 2).  
  • Approved exceptions will remain in effect based on the percentage of available points approved by the Lung Review Board, and the points assigned for each exception will be reduced proportionately to the adjusted goal weights. 

Exhibit 2. Revised Lung Composite Allocation Score 

Attribute Definition % of Available Points 
Waiting List Survival Expected 1-year waiting list survival 23.6111 
Post-Transplant Outcomes Expected 5-year post-transplant survival 23.6111 
Candidate Biology Total of ABO, CPRA, and height points 14.1666 
ABO Based on percentage of compatible donors by blood type 4.7222 
CPRA Based on percentage of compatible donors by CPRA 4.7222 
Height Based on percentage of compatible donors by height 4.7222 
Patient Access Total of pediatric and prior living donor points 23.6111 
Pediatric For candidates under 18 years old 18.8889 
Prior Living Donor For candidates who donated any organ 4.7222 
Placement Efficiency Total of travel and proximity efficiency points 15 

Note. Total Score = Waiting List Survival + Post-Transplant Outcomes + Candidate Biology + Patient Access + Placement Efficiency 

Acronyms. ABO=ABO blood group system, CPRA=Calculated Panel Reactive Antibody 

Anticipated impact

  • What it's expected to do
    • Reduce median travel distance for lungs
    • Reduce logistical complexity in lung allocation
    • Improve policy compliance
  • What it won’t do
    • It will not completely alleviate AOOS.

Terms to know

  • Allocation out of OPTN sequence (AOOS): An organ allocation event in which an organ is offered, accepted, and/or transplanted outside the established match sequence.
  • Composite Allocation Score (CAS): This score determines priority for receiving a lung transplant when donor lung(s) become available.
  • Calculated Panel Reactive Antibody (CPRA): A score (0–100%) indicating the percentage of potential donors a patient is immunologically incompatible with due to antibodies.

Read the full proposal (PDF - 354 KB)

Date Last Reviewed:

Submit a Comment

Lisa Craig 06/05/2026

Lisa Craig
State of Residence: Florida

Relationship to Lung Transplant: Caregiver/Community Member

Regarding the November 20, 2025 OPTN Board meeting vote to alter the Lung Transplant Continuous Allocation Score (CAS) points and ratios in order to address concerns about Allocation out of Sequence (AOOS).

I am writing to express my strong desire for HRSA/OPTN Board to reverse the decision voted on during the November 20, 2025 Board meeting to remove five points from categories describing a recipient's medical condition and reallocating them to the efficiency category, returning the CAS point allocation and ratios to the pre November 20, 2025 vote levels.

This matters to me because Do not change the transplant priority rules. Type O blood is most common and eliminating priority will be detrimental to the most common in need and the most eligible recipients!

Additionally, I share the concerns expressed by the Lung Transplant Foundation letter directed to HRSA and the OPTN Board of Directors, submitted via the Critical Comments and Directives Pathway on April 13, 2026, and signed on to by seventeen distinct lung disease patient advocacy organizations, identifying the following primary concern areas as reasons to oppose this change to the CAS:

- Bucking decades of protocol, no prospective public comment period occurred before this major policy change, and no clinical evidence was supplied justifying the use of the emergency pathway at the time of the vote.
- No clinical rationale was given for ignoring the recommendation of the Lung Committee, which unanimously opposed this change to the CAS, and no solutions were proposed to address the concern that initial modeling suggested that these changes would increase the waitlist mortality for high-risk individuals.
- The change in protocol from extensive modeling before policy changes are implemented to minimal modeling with an intention of catching problems after they occur will endanger lives unnecessarily.
- Patient voices and specialized lung transplant expert opinion should be centered at every stage of OPTN policy development, including the identification of problems, proposed solutions, and the implementation of new policy geared at addressing identified problems.

Thank you again for the opportunity to comment. I sincerely hope that, based on the consistent and unanimous dissent from lung transplant professionals, lung transplant candidates/recipients, and community members, HRSA and the OPTN Board of Directors will reverse the November 20, 2025 vote and restore the CAS to its previous point and ratio allocation.

Sincerely,
Lisa Craig

Lisa Craig 06/05/2026

Lisa Craig
State of Residence: Florida

Relationship to Lung Transplant: Caregiver/Community Member

Regarding the November 20, 2025 OPTN Board meeting vote to alter the Lung Transplant Continuous Allocation Score (CAS) points and ratios in order to address concerns about Allocation out of Sequence (AOOS).

I am writing to express my strong desire for HRSA/OPTN Board to reverse the decision voted on during the November 20, 2025 Board meeting to remove five points from categories describing a recipient's medical condition and reallocating them to the efficiency category, returning the CAS point allocation and ratios to the pre November 20, 2025 vote levels.

This matters to me because Do not change the transplant priority rules. Type O blood is most common and eliminating priority will be detrimental to the most common in need and the most eligible recipients!

Additionally, I share the concerns expressed by the Lung Transplant Foundation letter directed to HRSA and the OPTN Board of Directors, submitted via the Critical Comments and Directives Pathway on April 13, 2026, and signed on to by seventeen distinct lung disease patient advocacy organizations, identifying the following primary concern areas as reasons to oppose this change to the CAS:

- Bucking decades of protocol, no prospective public comment period occurred before this major policy change, and no clinical evidence was supplied justifying the use of the emergency pathway at the time of the vote.
- No clinical rationale was given for ignoring the recommendation of the Lung Committee, which unanimously opposed this change to the CAS, and no solutions were proposed to address the concern that initial modeling suggested that these changes would increase the waitlist mortality for high-risk individuals.
- The change in protocol from extensive modeling before policy changes are implemented to minimal modeling with an intention of catching problems after they occur will endanger lives unnecessarily.
- Patient voices and specialized lung transplant expert opinion should be centered at every stage of OPTN policy development, including the identification of problems, proposed solutions, and the implementation of new policy geared at addressing identified problems.

Thank you again for the opportunity to comment. I sincerely hope that, based on the consistent and unanimous dissent from lung transplant professionals, lung transplant candidates/recipients, and community members, HRSA and the OPTN Board of Directors will reverse the November 20, 2025 vote and restore the CAS to its previous point and ratio allocation.

Sincerely,
Lisa Craig

Marshall Lymer 06/04/2026

Marshall Lymer
State of Residence Kansas

Relationship to Lung Transplant
Husband/Caregiver

Regarding the November 20, 2025 OPTN Board meeting vote to alter the Lung Transplant Continuous Allocation Score (CAS) points and ratios in order to address concerns about Allocation out of Sequence (AOOS).

I am writing to express my strong desire for HRSA/OPTN Board to reverse the decision voted on during the November 20, 2025 Board meeting to remove five points from categories describing a recipient's medical condition and reallocating them to the efficiency category, returning the CAS point allocation and ratios to the pre November 20, 2025 vote levels.

This matters to me because My name is Marshall Lymer, I'm the husband/caregiver for Cynthia Lymer a lung transplant candidate. I don't completely understand all the changes that have been made to the transplant program so I'm just going to share our story.

July of 2021, I retired after a 48-year career as Auto mechanic. After retiring and being at home I found I could not get my wife to get out and go anywhere, she just would say she was too tired.
We'd went to the doctor several times and got a diagnosis of asthma or sinus infection or seasonal allergies. 

In August of 2022 we got a very light case Covid, kind of like a cold. Everything went downhill for her rapidly after that. I took her back to the doctor and told him he needed to do a chest x-ray because there's something wrong with this woman. He listened to her and said your right I need to do a chest x-ray. After the chest x-ray, he came in and said he didn't even know what he's looking at he's never seen anything like that. Off to cardiologist after that all checked out okay then to a pulmonologist. After a lung biopsy and the diagnosis of ILD off to Integris Hospital Transplant Center in OKC.
After their evaluation we were told she probably wouldn't live a year if she didn't get a transplant. After all their testing and 70 lb. weight loss we finally got her on the list July of 2024.

And here we are sitting, bags packed ready to go when they call! We go nowhere as she has no immune system and we've been told if she caught something it would kill her. I resigned my position as Elder in our church and we watch Church online, if I get sick, I'll just bring it home to her. We sold our camper our boat and my little 1975 Porsche 914 that's been in the family since new. Can't use them so may as well cut expenses.

And here we sit! She's getting weaker every day and unable to do anything. Going into this we thought we'd be on the other side of this thing by now, and here we sit! My wife is 4 ft11 so her size appears to be the big obstacle. Our Dr's are as frustrated as we are at the lack of offerings for lungs.
At this point this feels like the long goodbye, something needs to happen soon!

There's 3 parts to everything in life; there's our part, we have done that. There's God's part, he is doing that, we could not have made it this far without his mercy, strength, and provision. Then their other people's part. There-in seems to be the problem. These numbers you look at to make decisions on policy changes are people like us. Remember that as you contemplate how you choose which person gets lungs. Thanks for listening. 

Additionally, I share the concerns expressed by the Lung Transplant Foundation letter directed to HRSA and the OPTN Board of Directors, submitted via the Critical Comments and Directives Pathway on April 13, 2026, and signed on to by seventeen distinct lung disease patient advocacy organizations, identifying the following primary concern areas as reasons to oppose this change to the CAS:

- Bucking decades of protocol, no prospective public comment period occurred before this major policy change, and no clinical evidence was supplied justifying the use of the emergency pathway at the time of the vote.
- No clinical rationale was given for ignoring the recommendation of the Lung Committee, which unanimously opposed this change to the CAS, and no solutions were proposed to address the concern that initial modeling suggested that these changes would increase the waitlist mortality for high-risk individuals.
- The change in protocol from extensive modeling before policy changes are implemented to minimal modeling with an intention of catching problems after they occur will endanger lives unnecessarily.
- Patient voices and specialized lung transplant expert opinion should be centered at every stage of OPTN policy development, including the identification of problems, proposed solutions, and the implementation of new policy geared at addressing identified problems.

Thank you again for the opportunity to comment. I sincerely hope that, based on the consistent and unanimous dissent from lung transplant professionals, lung transplant candidates/recipients, and community members, HRSA and the OPTN Board of Directors will reverse the November 20, 2025 vote and restore the CAS to its previous point and ratio allocation.

Sincerely,
Marshall Lymer

Pamela A Lackey 06/04/2026

Pam Lackey
State of Residence: Oklahoma

Relationship to Lung Transplant: Lung Transplant Candidate/Recipient

Regarding the November 20, 2025 OPTN Board meeting vote to alter the Lung Transplant Continuous Allocation Score (CAS) points and ratios in order to address concerns about Allocation out of Sequence (AOOS).

I am writing to express my strong desire for HRSA/OPTN Board to reverse the decision voted on during the November 20, 2025 Board meeting to remove five points from categories describing a recipient's medical condition and reallocating them to the efficiency category, returning the CAS point allocation and ratios to the pre November 20, 2025 vote levels.

This matters to me because It is affecting my ability to get lungs. My biological factors are O+ blood type, 5'0", and I'm listed at what's considered a "rural" lung transplant center. With the new allocation system, all these factors put me at a disadvantage. I am unfairly penalized and will have to wait longer for lungs. The current CAS need to be reversed.

Additionally, I share the concerns expressed by the Lung Transplant Foundation letter directed to HRSA and the OPTN Board of Directors, submitted via the Critical Comments and Directives Pathway on April 13, 2026, and signed on to by seventeen distinct lung disease patient advocacy organizations, identifying the following primary concern areas as reasons to oppose this change to the CAS:

- Bucking decades of protocol, no prospective public comment period occurred before this major policy change, and no clinical evidence was supplied justifying the use of the emergency pathway at the time of the vote.
- No clinical rationale was given for ignoring the recommendation of the Lung Committee, which unanimously opposed this change to the CAS, and no solutions were proposed to address the concern that initial modeling suggested that these changes would increase the waitlist mortality for high-risk individuals.
- The change in protocol from extensive modeling before policy changes are implemented to minimal modeling with an intention of catching problems after they occur will endanger lives unnecessarily.
- Patient voices and specialized lung transplant expert opinion should be centered at every stage of OPTN policy development, including the identification of problems, proposed solutions, and the implementation of new policy geared at addressing identified problems.

Thank you again for the opportunity to comment. I sincerely hope that, based on the consistent and unanimous dissent from lung transplant professionals, lung transplant candidates/recipients, and community members, HRSA and the OPTN Board of Directors will reverse the November 20, 2025 vote and restore the CAS to its previous point and ratio allocation.

Sincerely,
Pam Lackey

Deborah Wolf 06/04/2026

This new procedure is patently unfair to lung trnafer recipients. Please change it back. It is a matter of life and death. Sincerely, Deborah Wolf