Hereditary Hemorrhagic Telangiectasia (HHT) Center

Goal 1: The program aims to strengthen the system of services for people with HHT, their families, and caregivers by establishing a national center supporting comprehensive care and expand access to care for the HHT population. This care includes screening, diagnosis, and treatment to improve health outcomes. One of the Make America Healthy Again (MAHA) initiatives include addressing the root causes of the chronic disease epidemic, rather than treating symptoms alone. HRSA's HHT Center Program expands patient access to coordinated care and long-term management of a rare and chronic condition, consistent with MAHA's broader prevention health goals.By August 31, 2029, the program aims to achieve the following objectives:1. Increase the percentage of patients seen by a multidisciplinary HHT team in each clinical center's catchment area, including those from underserved communities, by 15%. 2. 100% of clinical centers enter data into a national HHT patient registry maintained by the funding recipient.3. 100% of clinical centers participate in continuous quality improvement projects related to improving quality of life for people with HHT and expand access to care for the HHT population. 4. At least five clinical centers will electronically transfer de-identified patient data from their EHR systems to the national HHT patient registry.

Any domestic public or private entity, including an Indian tribe or tribal organization as those terms are defined in 25 U.S.C. 5304 (formerly cited as 25 U.S.C. 450b)) is eligible to apply. Domestic faith-based and community-based organizations are eligible to apply.

Nordia Williams

(240)475-3310